Leni is an exceptional child who loves to smile and spend quality time with her family. The complications caused by her lissencephaly disease impaired her ability to swallow. Getting Leni to eat and gain weight was the source of many tears for the whole family, and getting Enteral Nutrition support was a “Eureka” moment that changed their life.
Soon after starting tube feeds Leni went up two clothing sizes. She was also able to follow up on her treatment easily by getting her medications through the gastro-tube. Leni’s parents share their valuable insights on how tube feeds affected their lives.
"On day one, it was one of the first times in months that she slept through the night. Our first thought was: Why didn’t we do this much sooner?"
"The formula supports her with all the necessary nutrients, carbohydrates, fats, and proteins, to help her catch up with growth, and tube feeds give us the free time to enjoy as a family."
"If you’re thinking about taking this step, then do it."
"We can go shopping with her, we can go visit her grandparents, we could go to the pool if we wanted. The feeding tube makes all that possible. It’s given us back such a high quality of life."
Do you have any restrictions in everyday life due to tube feeding?
Which challenges did you face when starting with tube feeding?
How do people around you react?
What is your daily routine?
Does feeding have to be exclusively via tube?
Which food do you use when?
Frebini® products are food for special medical purposes, that have to be used under medical supervision.
